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Download Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving by Institute of Medicine, Board on Health Care Services, Board PDF

By Institute of Medicine, Board on Health Care Services, Board on Health Sciences Policy, Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule, Lawrence O. Gostin, Laura A. Levit, Sharyl J. Nass

ISBN-10: 0309124999

ISBN-13: 9780309124997

Within the realm of health and wellbeing care, privateness protections are had to shield sufferers' dignity and stop attainable harms. Ten years in the past, to handle those issues in addition to set instructions for moral overall healthiness study, Congress known as for a collection of federal criteria referred to now because the HIPAA privateness Rule. In its 2009 record, past the HIPAA privateness Rule: bettering privateness, enhancing well-being via examine, the Institute of Medicine's Committee on wellbeing and fitness examine and the privateness of healthiness details concludes that the HIPAA privateness Rule doesn't defend privateness in addition to it may, and that it impedes very important health and wellbeing study.

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Extra info for Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research

Example text

HHS should simplify the criteria that IRBs and Privacy Boards use in making determinations for when they can waive the requirements to obtain authorization from each patient whose PHI will be used for a research study, in order to facilitate appropriate authorization requirements for responsible research. Regardless of whether Recommendation I or II is implemented, the following recommendations, which are independent of the Privacy Rule, should be adopted: III. Implement changes necessary for both policy options above (Recommendations I and II).

They reflect a broad consensus about the need for standards to protect individual privacy and to facilitate information flows in an increasingly technology-dependent, global society. ” This is a broad definition that may include biomedical research, epidemiological studies, and health services research,10 as well as studies of behavioral, social, and economic ­factors that affect health. Perhaps the most familiar form of health research is the clinical trial in which patients volunteer to participate in studies to test the efficacy of new medical interventions.

Educating the public about how research is done and what value it provides. 29 30 BEYOND THE HIPAA PRIVACY RULE of its limited authority) by imposing restrictions on information disclosures by covered entities. The National Committee on Vital and Health Statistics (NCVHS) and others have noted the limitations of the HIPAA Privacy Rule and have called for stronger protections of health privacy—notably, by expanding the purview of the Privacy Rule beyond the current covered entities. The IOM committee believes an even bolder change is needed.

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Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research by Institute of Medicine, Board on Health Care Services, Board on Health Sciences Policy, Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule, Lawrence O. Gostin, Laura A. Levit, Sharyl J. Nass


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